Specialized Information for:

Long-Term Care ConsumersFamily MembersAdvocates

2015 Consumer Voice Conference Materials

Renaissance Arlington Capital View Hotel
2800 South Potomac Avenue, Arlington, VA 22202

November 4-7, 2015

Wednesday, November 4

1:00pm – 4:00

 

Intensives

1.  Managing Challenging Behaviors Without Drugs

Presenters:  Jonathan Evans, MD; Morris Kaplan, J.D., Gwynedd Square Nursing Center

Powerpoint Presentation (Kaplan)

2.  Advocacy Strategies and Appeals – Involuntary Discharge from Nursing Homes and Assisted Living

Presenters:  Eric Carlson, J.D. Justice in Aging; Joshua Casper, J.D., Casper Law, LLC

Powerpoint Presentation (Casper)

Transfer-Discharge Intensive Case Studies

9:00am – 10:30am

Opening Plenary – Listening Session with CMS – The Survey and Enforcement System: Experiences from the Field

Presenters: Toby Edelman, Center for Medicare Advocacy; Mitzi McFatrich, Executive Director, Kansas Advocates for Better Care; Sarah Slocum, Michigan State LTC Ombudsman

CMS Officials: Karen Tritz, Director, Division of Nursing Homes in the Survey and Certification Group, Centers for Medicare and Medicaid Services; Evan Shulman

Plenary Recording (Audio)

Plenary Transcript

Thursday, November 5

11:00am – 12:15 pm

 

Workshops

 

 

Combating the Excessive and Illegal Use of Atypical Antipsychotic Drugs in People with Dementia (LEGAL TRACK)

Presenters: Iris Gonzalez, Senior Attorney, AARP Foundation Litigation, Kelly Bagby, Senior Attorney, AARP Foundation Litigation; Jonathan Evans, M.D.

Powerpoint Presentation (Evans)

Powerpoint Presentation (Bagby & Gonzalez)

AARP Letter to CMS and FDA

Overmedications Contact Chart sent to CMS and FDA

AARP Bulletin Article

 

Advocacy Strategies Through Managed Care

Presenters: Heather Bruemmer, State LTC Ombudsman, Wisconsin; Gwen Orlowski, J.D. Legal Services of New Jersey

Powerpoint Presentation (Orlowski)

 

Family Advocacy

Presenters: Kathy Bradley, My Mother’s Voice; Addie O’Connell, Family Council Member, VA

Powerpoint Presentation (Bradley)

 

Unlicensed Care Homes and The Dangers to Residents

Presenters: Catherine Hawes, Regents Professor Emeritus, Texas A&M, School of Public Health; Douglas Anders, Senior Policy Officer, City of Houston, TX; Dean Lerner, Esq., Health Care Fraud Consultant to USAttorney, Northern District of Iowa; Attorney Consultant, Disability Rights Iowa; former Director, Iowa Department of Inspections and Appeals

Powerpoint Presentation

12:15pm – 2:00pm

Resident Empowerment Luncheon

 Audio Recording

 

2:15pm – 3:30pm

Workshops

 

 

Protecting Residents’ Rights from Arbitration (LEGAL TRACK)

Presenter: Joseph Musso, Esq. Ashcraft & Gerel, LLC

Powerpoint Presentation

 

Challenges with Nursing Home Enforcement

Presenters: Toby Edelman, Center for Medicare Advocacy; Richard Mollot, Long-Term Care Community Coalition; Pam Walz, Community Legal Services

 

 

The QIO-QIN Network

Presenters: Tara Cooke, Outreach Specialist, KEPRO ; Pam Meador

Powerpoint Presentation (PPT)

Powerpoint Presentation (PDF)

 

Addressing the Care Needs of Younger Residents

Presenters: Nancy Overstreet, Brian Capshaw, Yvette Green

Powerpoint Presentation

Powerpoint Presentation

4:00pm – 5:15pm

Workshops

 

 

Issues in Assisted Living Litigation (LEGAL TRACK)

Presenters: Joshua Casper, J.D., Casper Law LLC; Victoria Nugent, J.D. Cohen Milstein Sellers & Toll

Powerpoint Presentation (Casper)

Powerpoint Presentation - Legal Theories for Addressing Deceptive and Fraudulent Business Practices

 

Journey to Culture Change

Presenters: Nancy Kusmaul, Assistant Professor, Baccalaureate Social Work Program, University of Maryland, Baltimore County; Karen Schoeneman, Owner, Karen Schoeneman Consulting, LLC; Patricia Hagen, Director of Memory Care, Charles E. Smith Life Community, Chairperson, Maryland Culture Change Coalition; Eileen Bennett, Director, Montgomery County (MD) LTC Ombudsman Program

Powerpoint Presentation

 

Protecting Residents from Financial Exploitation

Presenters: Naomi Karp, Senior Policy Analyst, Consumer Financial Protection Bureau; Iris Freeman, Adjunct Professor of Elder Justice and Policy, William Mitchell College of Law.

Powerpoint Presentation

 

Transcending Tragedy: Promoting the Rights of Residents with Dementia

Presenters: Jennifer Carson, Chief Learning Officer, Alzheimer’s Resource Center; Peter Reed

Powerpoint Presentation 

Friday, November 6

9:00am – 10:30am

Plenary – Advocating for Real Reform Through the New Federal HCBS Regulations

Presenters: Melissa Harris, Deputy Director, Disabled and Elderly Health Programs Group, Center for Medicaid and CHIP Services, Centers for Medicare and Medicaid Services; Eric Carlson, Directing Attorney, Justice in Aging; Becky Kurtz, Director, Long-Term Care Ombudsman Program, Administration for Community Living

Powerpoint Presentation (Carlson)

11:00am – 12:30pm

 

Workshops

 

 

Consumer Centered End of Life Care: Doing Better in LTC Facilities

Presenters: Kimberly Callinan, Chief Program Officer, Compassion and Choices; Brian Lindberg, Executive Director, Consumer Coalition for Quality Health Care; Pamela Edgar, End-of-Life Manager, Compassion and Choices

Powerpoint Presentation (Callinan & Edgar)

Powerpoint Presentation (Lindberg)

 

Long-Term Care Ombudsmen and Legal Services: Collaborations in Advocacy

Presenters: Alison Hirschel, Michigan Elder Justice Initiative; Pam Walz, Community Legal Services

 

 

Grassroots Advocacy – Successes in the Field

Presenters: Mitzi McFatrich, Executive Director, Kansas Advocates for Nursing Home Reform; Patricia Hunter, Washington State LTC Ombudsman; Joseph Rodrigues, California State LTC Ombudsman

Powerpoint Presentation (McFatrich)

Consumer Voice Advocacy Webinars

 

Advocacy by Numbers: Using Data to Make Your Case

Presenters: Louise Ryan, Administration for Community Living; Richard Mollot, Long-Term Care Community Coalition

Powerpoint Presentation (Ryan)

Powerpoint Presentation (Mollot)

12:30pm – 2:30pm

Awards Luncheon

Audio Recording Pt. 1

Audio Recording Pt. 2

Award Winner Information

3:00pm – 4:30pm

 

Workshops

 

 

How the New Ombudsman Rule Supports Person-Centered Advocacy

Presenter: Becky Kurtz, Director, Office of Long-Term Care Ombudsman Programs, Administration for Community Living; Greg Shelley, Volunteer Coordinator/Staff Ombudsman, Harris County LTC Ombudsman Program; Sara Hunt, Long-Term Care Ombudsman Resource Center

PowerPoint Presentation (Kurtz)

Powerpoint Presentation - NORC Resources

Powerpoint Presentation (Shelley)

 

Barriers to Successful Transitions and What to Do About It

 Presenters: Jeni Coyne, Consumer Voice; Cynthia Rudder, Long-Term Care Consultant; Dan Timmel, CMS

Powerpoint Presentation (Coyne)

Powerpoint Presentation (Rudder)

Powerpoint Presentation (Timmel)

 

Achieving Staff Stability

 Presenters: Barbara Frank, B&F Consulting; Cathie Brady, B&F Consulting

Powerpoint Presentation (Frank & Brady)

 

Meeting Health Needs in Assisted Living

Presenters: Eric Carlson, Justice in Aging; Cindy Eggleston, Registered Nurse, Regional Director of Health & Wellness, Brightview Senior Living

PowerPoint Presentation (Carlson)

Powerpoint Presentation (Eggleston)

7:30pm – 9:00pm

Friday night at the movies - Alive Inside: The Story of Music & Memory 

 

Saturday, November 7

 

8:30am – 10:00am

Plenary - Palliative Care for Persons Living w Advanced Dementia: Why Comfort Matters

Presenters: Tena Alonzo, Director of Education & Research, Beatitudes Campus; Ann Wyatt, Coordinator, Palliative Care Project, Alzheimer’s Association NYC Chapter

Plenary Recording (Audio)

PowerPoint Presentation

10:30am – 12:00pm

Closing Plenary – The Power of Advocacy: How Do We Get Where We’re Going?  

Panelists: Elma Holder; Barbara Frank; Alice Hedt; Patty Ducayet; Sarah Burger; Moderator: Diane Menio

Audio Recording (Beginning around 1:30)

Video Recording

Better Staffing: The Key to Better Care

Consumer Voice's Nursing Home Staffing Campaign

About the Campaign


We know that higher levels of staffing lead to better care, but the federal government does not require nursing homes to have at least a minimum number of staff on duty. As a result, every day across the country there are nursing home residents who aren’t getting the care they need because there aren’t enough aides and nurses. Understaffing harms nursing home residents and can lead to pressure ulcers (bedsores), infections, malnutrition, dehydration and injuries from falls.

Nursing home resident experiences and more than 100 studies, articles and government documents have identified the important relationship between staffing and quality of care. Even the best nurses and nurse aides can’t deliver quality care if there aren’t enough of them.

The Federal government has found that nursing homes that do not meet a recommended level of 4.1 hours per day of total nursing time per resident may be putting their residents at risk. This is an issue that affects all of us; more than 40% of Americans who reach the age of 65 will spend some time in a nursing home during their remaining years. 

Our Nursing Home Staffing Campaign will educate the public and policymakers about the need for stronger nursing home staffing laws at both the state and federal levels and advocate for such laws to be passed. Please join us in making sure there is adequate staffing to protect the safety and well-being of nursing home residents. Our country’s most vulnerable citizens deserve no less. Click here to support our campaign! 

On Tuesday, June 24th, we held a soft launch of our campaign through a virtual kickoff. To view the slides from the presentation, click here.

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Contribute


Contribute to the Staffing Campaign!  Your financial support helps us provide important resources and continue our advocacy to make sure there is adequate staffing to protect the safety and well-being of nursing home residents.  Consider a donation of $41 or $410 to support the "4.1 It CAN Be Done" movement.

Donate now!
 

4.1- It CAN be done: The Campaign's Social Media Movement


Help show your support for the Better Staffing: the Key to Better Care campaign by sending us a photo saying “4.1 It CAN Be Done!” We will share your pictures of support with our network through Twitter, Facebook and this website! Email photos to info@theconsumervoice.org, tweet us @ConsumerVoices with the hashtag #TheKeyToBetterCare or post it on our Facebook page. Here are a few examples of the great photos we've received so far:

        

         

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 Take Action!


We need YOUR help in advocating for stronger staffing in our nation's nursing homes! Here's how you can get involved:

  • Join the campaign here.

  • Send an email to your members of Congress asking them to support increased nursing  home staffing. Use our easy and fast online system. Just click here.

In your community:

  • Speak to organizations, community groups, service clubs, faith communities – any group - about the need for more staff in nursing homes and about our Staffing Campaign. Use our ready-to-go PowerPoint presentation. Hand out the consumer fact sheet. Distribute postcards, collect signed cards and mail them to us.* 

  • Ask your members of Congress to support increased nursing home staffing.

    • Send an email to them using our easy and fast online system. Just click here.

    • Complete a postcard and send it to us.*

    • Visit one or more of your members of Congress in their district. Give them the Staffing Issue Brief. If you need guidance and help arranging and conducting this visit, contact the Consumer Voice (info@theconsumervoice.org or 202-332-2275).

  • Send a letter to the editor to your local newspaper. Use our sample letter.

In facilities:

  • Talk to as many residents and family members as possible about the Staffing Campaign!

  • Hand out the consumer fact sheet.

  • Ask residents and families to sign the postcard to send a message to their members of Congress about the need for more staff – nurses and nurse aides - in nursing homes. Collect signed cards and mail them to us.* 

  • Interview one or more residents using our resident interview materials (see Toolkit below). Everything is outlined for you. It only takes 10 minutes!  Submit the results to Consumer Voice.*

  • Video record or audio tape residents who have specific stories to tell and who are willing to be recorded. Send the video or tape to the Consumer Voice.*

  • Speak to resident councils and family councils about the Staffing Campaign. Use our ready-to-go PowerPoint presentation. Hand out the consumer fact sheet. Distribute postcards, collect signed cards and mail them to us.*

*Items can be mailed to us at: National Consumer Voice for Quality Long-Term Care, Attn: Staffing Campaign; 1001 Connecticut Avenue, NW, Suite 425; Washington, DC 20036; e-mailed to us at info@theconsumervoice.org; or faxed to us at 866.230.9789. In addition, you can order postcards in bulk by filling out this ordering form and e-mailing to info@theconsumervoice.org or mailing to us with payment - the cost is for shipping only - at National Consumer Voice for Quality Long-Term Care, 1001 Connecticut Ave NW, Suite 425, Washington, DC 20036.

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Campaign Toolkit


We've put together the following resources to make your advocacy for more staffing as easy as possible. Click on the links below to access these resources:

  Campaign Description Handout 

  Nursing Home Staffing Campaign: What You Can Do!

  Ways Ombudsmen Can Help to Support the Campaign

  Consumer Fact Sheet on Nursing Home Staffing

  Issue Brief on Nursing Home Staffing

  Campaign Postcard

  Campaign Talking Points

  Campaign Letter to the Editor

  Campaign Powerpoint Presentation

  Campaign Nursing Home Resident Interview Instructions

  Campaign Nursing Home Resident Interview Questions

  Campaign Nursing Home Resident Interview Waiver

  Laws/Regulations and Research Related to Staffing

 

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Resources on Nursing Home Staffing


Research and Reports

  • The Need for Higher Minimum Staffing Standards (2016)
    This report eviews how nursing homes have serious quality problems, in part, because of inadequate levels of nurse staffing.  The report by Charlene Harrington, John F. Schnelle, Margaret McGregor and Sandra F. Simmons discusses the relationship between nursin ghome quality and staffing and the barriers to staffing reform.  Multiple studies have demonstrated a need for higher minimum nurse staffing standards in nursing homes as it is shown to have a positive relationship with nursing home quality.  Yet, many barriers prevent the implementation of higher staffing standards like concerns about cost and enforcement and strong nursing home industry political opposition.

  • Nursing Facilities, Staffing, Residents and Facility Deficiencies, 2005 Through 2010 by Charlene Harrington, Ph.D., et al. The October 2011 edition of this book shows trends in U.S. nursing homes by state for 2005 through 2010. The data are from the federal On-Line Survey and Certification System (OSCAR) reports that are completed at the time of the annual nursing home surveys by state Licensing and Certification programs for the U.S. Centers for Medicare and Medicaid Services. Book sections include: Introduction; Facility Characteristics; Resident Characteristics and Services Provided; Staffing Levels; Facility Deficiencies from State Survey Evaluations; Summary; References; and Technical Notes.

  • The Influence of Nurse Staffing Levels on Quality of Care in Nursing Homes (Abstract) This study examines the relationship between increasing certified nursing assistants (CNAs) and licensed nurse staffing ratios and deficiencies in Florida nursing homes over a four-year period.To view the full study, you must be a subscriber to the database.

  • Nursing Home Staffing Guide (second edition 2002) The Consumer Voice for Quality Long-Term Care guide for residents, families, friends, and caregivers

  • Appropriateness of Minimum Nurse Staffing Ratios in Nursing Homes - Report to Congress: Phase II Overview: Background, Study Approach, Findings, and Conclusions This purpose of this report is to complete the Report to Congress that was mandated by Public Law 101-508 which required the Secretary to report to the Congress on the appropriateness of establishing minimum caregiver ratios for Medicare and Medicaid certified nursing homes. A Phase I report of preliminary findings was delivered to Congress in July 2000.

  • Nurse Staffing Standards Recommended by Consumer Voice: In 1998, Consumer Voice's members approved what are widely known as the Consumer Voice Minimum Staffing Standards for nursing homes.

  • Consumer Perspective on Quality Care (Executive Summary) This 1985 document is still a seminal study of quality care as defined by the experts -- nursing home residents themselves. It recounts the research, discussions and findings of a Consumer Voice survey of 400 residents in 15 cities and shows their strong endorsement of nurse staffing as the most important component of care.

State Resources, Regulations & Proposed Staffing Legislation

Archived Resources

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Resources for Advocates

Please click on the links below or to the left to find resources to assist individuals and/or groups in advocating for quality long-term care.

Resources For Family Members

Please click on the links below or to the left to find resources to assist family members and loved ones of long-term care consumers in advocating for quality care.

Resources for Long-Term Care Consumers

Please click on the links below or to the left to find additional resources for consumers on how to achieve quality long-term care. 

 

Piecing Together Quality Long-Term Care: A Consumer's Guide to Choices and Advocacy: This guide from the National Consumer Voice for Quality Long-Term Care (the Consumer Voice) and accompanying fact sheets are designed for advocates and consumers who are currently receiving or who may in the future receive long-term services and supports in the community. The purpose of these materials is to inform advocates and consumers about options for long-term services and supports, and to empower consumers - through education - to effectively advocate on their own behalf. Access the pdf version here.

Hear the voice of consumers - click here to listen to stories directly from long-term care consumers.

Policy Issues

The Consumer Voice envisions a world in which all consumers of long-term care, services and supports are treated with respect and dignity and have a wide range of affordable, quality options across all settings. These options will make it possible for individuals to receive care and services in the location and manner of their choice and to attain a high quality of life.

Consumer Voice's public policy priorities stem directly from our mission. We take action on these issues through our advocacy activities, which include educating and influencing policy makers, educating and empowering consumers and their families to advocate for themselves, and supporting the work of long-term care ombudsmen, citizen advocacy groups and independent advocates. 

To view our 2014 Policy Agenda, click hereTo learn more about some of our policy issues, view below. For information on additional policy topics please visit: Other Long-Term Care Issues and Resources.

Jobs & Internships

The Consumer Voice recognizes the value of a team made up of highly skilled people from a variety of backgrounds.

Staff Positions

There are no staff positions available at this time.

Internships

If you are interested in interning with the Consumer Voice, please inquite whether we have any open internship positions by emailing info@theconsumervoice.org.  If so, send a cover letter and resume to info@theconsumervoice.org.  A general description of our offered internship positions and application deadlines are below.

Application Deadlines:

  • Fall - August 31st
  • Spring - January 15th
  • Summer - April 31st

Internship Positions:

Volunteer

The Consumer Voice relies on the generous time and expertise that volunteers provide the organization. We encourage and welcome your interest in volunteering with the Consumer Voice!

Volunteers can assist the staff on projects including: marketing and communications, research, fundraising, public policy and administration. To apply, please send us a note explaining your interests and availability, along with a resume, to: info@theconsumervoice.org. **No Calls, please.

Let Us Hear From You

Thank you for your interest in the National Consumer Voice for Quality Long-Term Care.

Please contact us at:

The Consumer Voice
1001 Connecticut Avenue, NW, Suite 632
Washington, DC 20036
202.332.2275 (phone)
866.230.9789 (fax)

info@theconsumervoice.org

Media Relations Contacts:

To learn more about the Consumer Voice and its work with long-term care consumers, please contact:

Lori Smetanka, Executive Director
lsmetanka@theconsumervoice.org

Robyn Grant, Director of Public Policy and Advocacy
rgrant@theconsumervoice.org

Our Staff

Lori. O. Smetanka, J.D., Executive Director

Public Policy and Advocacy

Robyn Grant, Director, Public Policy and Advocacy

Alisha Lineswala, J.D., Public Policy and Program Specialist

National Long-Term Care Ombudsman Resource Center

Amity Overall Laib, Director

Carol Scott, Ombudsman Specialist

Katie Kohler, Associate, Program and Outreach

Sara Hunt, Consultant

Maria Greene, Consultant

Operations

Alejandra Ona, Bookkeeper/Accountant
aona@theconsumervoice.org

Christina Steier, Communications and Membership Coordinator

Other Support

Ira Hirsh, RedTongue (Conference Audio/Visual)

Media Information

To learn more about the Consumer Voice and its work with long-term care consumers, please contact:

Lori Smetanka, Executive Director
lsmetanka@theconsumervoice.org

Robyn Grant, Director of Public Policy and Advocacy
rgrant@theconsumervoice.org

About the Consumer Voice

For up-to-date information on Consumer Voice's most recent activities, read the weekly e-newsletter, The Voice.

The National Consumer Voice for Quality Long-Term Care was formed as NCCNHR (National Citizens’ Coalition for Nursing Home Reform) in 1975 because of public concern about substandard care in nursing homes. The Consumer Voice is the outgrowth of work first achieved by advocates working for Ralph Nader and later for the National Gray Panthers. Elma Holder, NCCNHR founder, was working with The Long-Term Care Action Project of the Gray Panthers when she organized a group meeting of advocates from across the country to attend a nursing home industry conference in Washington, DC. At that meeting, representatives of 12 citizen action groups spoke collectively to the industry about the need for serious reform in nursing home conditions.

The consumer attendees were inspired to develop a platform of common concerns and motivated to form a new organization to represent the consumer voice at the national level. Most of the original members had witnessed and endured personal experiences with substandard nursing home conditions.

Consumer Voice Brochure

Click Here to Download

Consumer Voice History At-A-Glance

1975


The National Consumer Voice for Quality Long-Term Care (formerly known as the National Citizens' Coalition for Nursing Home Reform) is formed when various citizen groups and long-term care ombudsman programs, convened by the National Gray Panthers' LTC Action Project, gather in Washington, DC, in June. Prior to attending a conference sponsored by the American Health Care Association, the groups meet to become acquainted and to develop recommendations to present at the conference in a united consumer voice.

The Consumer Voice holds its first press conference, attended by Dr. Arthur Flemming, Commissioner on Aging.

1978


The Consumer Voice issues its first paper, The Plight of the Nurse Aide in America's Nursing Homes. A preliminary report on nursing home costs issues also is released. Both are circulated widely to health-care professionals, state and national organizations, state government agencies and nursing homes.

During the Consumer Voice's second annual meeting, reaction and comments are issued on proposed changes federal nursing home rules. Also that day, Rep. Claude Pepper, chair of the House Select Committee on Aging, addresses Consumer Voice.

The Consumer Voice receives a three-year grant from Volunteers in Service to America (VISTA) to recruit, train and place 40 volunteers in 13 project sites, strengthening local and state member groups toward a stronger national network.

1981


The Consumer Voice Information Clearinghouse expands to include board and care issues. The Clearinghouse thrives thanks to a grant from the Administration on Aging. Today, it receives major support from the AARP.


The Consumer Voice conducts a national survey on Medicaid discrimination, issuing a report on the scope of the problem and avenues for resolution. A Citizens' Action Guide to Reimbursement Issues also is published, introducing consumers to reimbursement principles and strategies for promoting quality through the reimbursement system.

1983


The Consumer Voice issues, with 43 national organizations and individuals, A Consumer Statement of Principles for the Nursing Home Regulatory System, following the 1982 release of proposed federal regulations that threatened to severely weaken nursing home monitoring.

Responding to the Consumer Voice's statement and congressional directives, the Institute of Medicine (IOM) launches a study of nursing home regulations. IOM study committee members invite the Consumer Voice to several briefings and work sessions, and commission two Consumer Voice papers on resident and consumer participation.

1985


The Consumer Voice publishes A Consumer Perspective on Quality Care: The Residents' Point of View. For this seminal report, the Coalition convened small groups of residents in 15 states, who described their vision of quality nursing-home care.

A Consumer Perspective is released during a National Symposium on Quality Care in Clearwater Beach, Florida. Seventeen of the participating residents join researchers, educators, advocates, practitioners and public officials to respond to residents' views and chart ways to achieve quality care.

1986


In response to the IOM report, Improving the Quality of Care in Nursing Homes, Elma Holder launches the Campaign for Quality Care (CBC), bringing together national groups representing various health professions, workers, providers and consumers, to develop consensus positions to recommend to Congress in a forum hosted by Sen. John Heinz. Some 10 years later, CBC continues to meet monthly to find common ground on a range of long-term care issues.

The Consumer Voice begins publishing the Quality Care Advocate.

1987


The Consumer Voice presents the Campaign for Quality Care's views to Congress during a session hosted by Sen. David Pryor, who helped craft landmark nursing home reforms. The Coalition steers a national movement for passage of the 1987 Nursing Home Reform Act, comprised of amendments in the federal budget bill, the Omnibus Reconciliation Act of 1987 (OBRA '87). Congressional sponsors Sen. George Mitchell and Reps. John Dingell, Pete Stark and Henry Waxman hold hearings, where national organizations testify in support of the Campaign's consensus positions.

With bipartisan support, Congress passes the Nursing Home Reform Act on December 22. Elma Holder and Barbara Frank call it "a tremendous victory for residents and for all those groups who worked so hard for so long."

1990


The Consumer Voice helps persuade a federal district court to rule that limited Medicaid-bed certification violates the U.S. Civil Rights Act.

1993


The Administration on Aging (AoA) awards the Consumer Voice a three-year grant to operate the National Long-Term Care Ombudsman Resource Center (NORC).

The Consumer Voice publishes Avoiding Physical Restraint Use, followed by the companion guide, Avoiding Drugs Used as Chemical Restraints.

1995


The Consumer Voice kicks off a campaign to save the Nursing Home Reform Act with a Washington press conference endorsed by Senators William Cohen and David Pryor and Representatives Pete Stark and Henry Waxman. Groups like AARP, the Alzheimer’s Association, the National Committee to Preserve Social Security and Medicare and the Service Employees International Union also commit to the Consumer Voice’s fight.

1996


The Consumer Voice publishes and begins national distribution of new book for consumers, Nursing Homes: Getting Good Care There. Authors are Burger, Hunt, Fraser and Frank.

1999


In conjunction with the Consumer Voice Annual Meeting, Senate Special Committee on Aging holds educational forum on Nursing Home Staffing.

2002


AoA celebrates the 30th Anniversary of the Ombudsman Program. Pilot project started in six states for ombudsman involvement in CMS Nursing Home Quality Initiative.

2003


AoA awards the Consumer Voice another three-year agreement to house NORC.

2005


Residents, family members, citizen advocacy group members, ombudsmen, workers and others speak passionately about the need for quality long-term care at official WHCOA event sponsored by Consumer Voice -- Giving Voice of Quality: A Consumer Dialogue on Facility Based Long-Term Care.

2005


The Consumer Voice celebrates its 30th anniversary by examining the past to build strategies for the future under the theme, “Working Together for Quality Long-Term Care.”

2007


NCCNHR added a tagline to its name becoming NCCNHR: National Consumer Voice for Quality Long-Term Care

The Consumer Voice testifies at May 2, 2007, hearing on OBRA ‘87, addresses enforcement, staffing and the need for transparency.

2009


Former Kansas Long-Term Care Ombudsman Kathy Greenlee sworn in as U.S. Assistant Secretary for Aging.

2010


The Consumer Voice celebrates its 35th anniversary.

NCCNHR: National Consumer Voice for Quality Long-Term Care begins doing business as begins doing business as The National Consumer Voice for Quality Long-Term Care with "Consumer Voice" as its shortened name.

2014


For up-to-date information on Consumer Voice's activities, read the weekly e-newsletter the Consumer Voice Gazette.

The Consumer Voice Clearinghouse

The one-stop-destination for long-term care information.

Visit it today