Specialized Information for:
Long-Term Care ConsumersFamily MembersAdvocatesCOVID-19
October 19 - 22, 2010
Caribe Royale Orlando All-Suite Hotel
Orlando, Florida
2010 Award Winners in Orlando
View a PDF version of the program
8:30 a.m. - 2:30 p.m. |
New State Long-Term Care Ombudsman Orientation (By Invitation Only) |
3:00 p.m. - 6:00 p.m. |
NASOP Meeting (By Invitation Only) |
7:00 a.m. - 7:00 p.m. |
Registration |
8:00 a.m. - 12:00 p.m. |
NASOP Meeting (Continued) (By Invitation Only) |
8:00 a.m. - 12:00 p.m. |
Citizen Advocacy Group (CAG) Meeting (By Invitation Only) |
12:30 p.m. - 3:30 p.m. |
Pre-Conference Intensives Empowered Decision Making for Those Without Capacity - Presenter: Viki Kind, Clincial Bioethicist, Kind Ethics Session Handouts & PowerPoint Presentations:
When making decisions for those without capacity, how do we know what’s the right thing to do? Learn the decision-making pathway, tools and questions to use to give voice to those who cannot advocate for themselves. These tools can be used throughout organizations as standards for respecting and protecting diverse residents. This is not a one-size-fits-all solution but can be adapted based on a person’s level of incapacity and the situation. End-of-life decision making will also be addressed. Respect and compassion are the core values of this process. Financial Exploitation of Care Facility Residents: Tools for Prevention and Intervention - Iris Freeman, Adjunct Professor, Center for Elder Justice and Policy, William Mitchell College of Law Session Handouts & PowerPoint Presentations:
This session presents a model protocol developed by the Center for Elder Justice and Policy in St. Paul, Minnesota, to help care facility staff prevent and detect financial exploitation of a resident and intervene effectively. Topics include behavioral definitions of exploitation, behavioral and environmental signs, strategies for prevention, action steps for facility staff, communication and documentation, working on financial issues with families and the roles and limitations of public agencies. This session is geared toward resident and family council leaders, administrative and social service staff in care facilities, long-term care ombudsmen and others working to combat elder financial exploitation. |
3:45 p.m. - 4:30 p.m. |
First-Timers Orientation - Sponsored by the National Association of Local Long-Term Care Ombudsmen |
4:30 p.m. - 5:15 p.m. |
Welcome Remarks & Roll Call of States featuring Sarah F. Wells, Consumer Voice Executive Director, Norma H. Atteberry, Consumer Voice Governing Board President, and Robyn Grant, Consumer Voice Leadership Council Vice Chair |
5:15 p.m. - 6:30 p.m. |
Opening Plenary: Focus on Elder Justice: A Prosecutor’s Perspective on Building Partnerships to Stop Elder Abuse - Presenter: Paul Greenwood, LL.B, Elder Abuse Prosecution Unit, San Diego District Attorney's Office One of the country’s leading prosecutors of elder abuse gives a passionate and practical overview of how to prosecute abuse of the elderly in long-term care. Paul Greenwood, LL.B, provides straightforward advice to ombudsmen and citizen advocates about overcoming barriers to partnering with law enforcement and tells how the Elder Justice Act will provide opportunities for research, advocacy and public education to aid prosecutors and advocates in addressing elder abuse. Greenwood is a former English barrister and solicitor who has practiced law in England and the United States for more than 30 years. He moved to California in1991 and heads the Elder Abuse Prosecution Unit in the San Diego District Attorney’s Office — one of the few dedicated elder abuse units in the country. He has prosecuted more than 200 felony cases of physical and financial elder abuse, and he travels widely, educating the public to protect against elder abuse and training frontline law enforcers and prosecutors. |
6:30 p.m. - 7:15 p.m. |
Reception |
7:15 p.m. |
Dinner on Your Own |
7:00 a.m. - 7:00 p.m. |
Registration |
7:00 a.m. - 8:00 a.m. |
Continental Breakfast & Group Meetings |
8:30 a.m. - 10:00 a.m. |
Plenary Session: Older Americans Act Reauthorization - Listening Session - Presenters: Joseph Rodrigues, California State LTC Ombudsman; President, National Association of State LTC Ombudsman Programs; Sara Clary, Director, Benefits Access Policy, National Council on Aging Reauthorization of the Older Americans Act (OAA) in 2011 offers a prime opportunity to reshape and modernize aging services in this country. Since 1965, the Older Americans Act (OAA) has promoted the development of a comprehensive and coordinated service system which has contributed to enhancing the lives of older individuals, family caregivers and persons with disabilities. During this plenary session, Official Listeners from the Senate Special Committee on Aging and the Administration on Aging will share goals and processes related to Reauthorization including how advocates can be involved in the process. Panelists will share perspectives and recommendations. Following the panel recommendations, participants will be invited to present their views on the reauthorization of the OAA. |
10:00 a.m. - 10:30 a.m. |
Break |
10:30 a.m. - 12:00 p.m. |
Breakout Sessions The Resident Wants Marlboros... Who Should I Listen To? Advocating for Residents With a Legal Representative - Presenters: Aubrey Posey, Legal Advocate, Florida Long-Term Care Ombudsman Program; Lashea Heidelberg, District Ombudsman Manager, East Central Florida Ombudsman Program; Steven Hitchcock, Attorney, Karol, Hausman, Sosnik & Finchum LLP Session Handouts & PowerPoint Presentations: When legal representatives are involved in a resident’s care, advocating for the resident’s choices and least restrictive alternatives can be difficult. Although state laws regarding guardianship, powers of attorney and other legal representatives vary, all of them share the concept of least restrictive alternatives and the necessity to promote the highest quality of care and life for the resident. This presentation will provide advocates working with residents tools to help them in promoting the residents’ retained rights while respecting the legal representative’s powers and duties. Inappropriate Use of Anti-Psychotics in Nursing Homes: Issues and Advocacy - Presenters: Karlin Mbah, Advocate, FRIA: The Voice and Resource for Quality Long-Term Care; Richard Mollot, Executive Director, Long Term Care Community Coalition; Toby Edelman, Senior Policy Attorney, Center for Medicare Advocacy, Inc. Session Handouts & PowerPoint Presentations:
The off-label use of antipsychotic medications (such as Haldol, Zyprexa, Risperdal and Seroquel) in elderly nursing home residents with dementia is a national concern, with research showing that they are not only ineffective in this population but also can cause severe side effects or death. Several pharmaceutical companies have been prosecuted for illegal promotion of antipsychotics as chemical restraints, and some states have taken steps to curb misuse. The panel will discuss the abuse of antipsychotics and strategies to create awareness of the problem and prevent misuse. Disaster Preparedness: Planning to Improve Outcomes - Presenter: Norma Atteberry, RN, BS, Consumer Voice Governing Board President Session Handouts & PowerPoint Presentations:
This session will review disasters that can affect long-term care facilities and the possibility of increased morbidity and mortality associated with poor planning and the execution of a disaster plan. The workshop will cover planning for resident-specific needs during a disaster, critical parts of an effective disaster plan for a facility and working with the community and state as facilities stay in place, evacuate and recover. The workshop also will look at dealing with a disaster from the medical director, facility administrator and consumer perspective. Cross-Cultural Communications: Ombudsman Programs and Legal Services Programs - Presenters: Eric Carlson, Attorney, National Senior Citizens Law Center; Karen Boyles, Ombudsman Program Coordinator, Atlanta Legal Aid Society; Sherry Huff Culp, Executive Director, Nursing Home Ombudsman Agency of the Bluegrass, Inc. “Why won’t she represent my client?” thinks the long-term care ombudsman. Meanwhile, on the other end of the phone, the lawyer thinks, “Why doesn’t the ombudsman program give me anything I can work with?” During this session, the presenters will describe the long-term care cases that seem most appropriate for legal representation and facilitate a give-and-take to explore how lawyers and ombudsman programs can work together for clients’ best interests. |
12:15 p.m. - 1:45 p.m. |
Boxed Lunch |
12:15 p.m. - 1:45 p.m. |
NALLTCO Membership Meeting |
12:15 p.m. - 1:45 p.m. |
Family Council and Family Members Meeting |
12:15 p.m. - 1:45 p.m. |
Roundtable Discussion on Care Setting Transitions and Home and Community-Based Care |
2:00 p.m. - 3:30 p.m. |
Breakout Sessions Session Handouts & PowerPoint Presentations:
The first 24-48 hours of a new resident’s stay in a care setting can make a critical difference in their long-term well-being, whether they are there for a short stay or for the rest of their lives. This session will explore how long-term care ombudsmen can support residents and families during this initial period, as they learn how the care setting works and the care staff learns about them. It will also facilitate sharing among participants about how to work collaboratively with care providers to maintain residents’ normal daily rhythms and thereby prevent problems from occurring.
Grassroots mobilization is a central element of the Campaign for Better Care and key to meeting the Campaign’s goals of improving health care delivery for vulnerable older adults with multiple chronic conditions and building a sustained movement of organized activists for social change. This workshop will highlight the strategies being used – online and on-the-ground – to build a lasting consumer voice of older adults and their families to advocate for better care. It will also engage attendees in innovative campaign brainstorming to identify creative new strategies and techniques to engage consumers in advocacy efforts. Are you an Owl or Shark? Conflict Management Skills for Ombudsmen - Presenter: Cindy Kincaid, Regional Ombudsman, Centralina Area Agency on Aging When working to develop conflict management skills for ombudsmen, are you an owl or shark? This session will help ombudsmen determine conflict management styles and then learn ways to work with other styles to successfully resolve conflict. Gain a better understanding of the steps to resolve conflict. What to do when all those involved want something different. |
3:30 p.m. - 4:00 p.m. |
Break |
4:00 p.m. - 5:30 p.m. |
Breakout Sessions Session Handouts & PowerPoint Presentations:
Learn more about how to encourage and work with your state to use funds from Civil Monetary Penalties (CMPs) to support innovative quality of life and care in your state’s nursing homes. CMPs present an underutilized resource for states to improve the quality of nursing home life. This session presents findings from a year-long project working with ombudsmen, consumers and advocates in four states to foster consumer involvement in states’ funding processes to increase funding of culture change initiatives and related activities. Learn about the strategies these consumers used. Use them in your state. At the end of the session, each participant will be asked to develop at least one goal to improve their state CMP funding process and at least one strategy for achieving that goal. Session Handouts & PowerPoint Presentations:
Protecting Residents’ Rights Through Litigation - Presenters: Steven Levin, JD, Founding Partner, Levin & Perconti; Wendy Meltzer, Executive Director, Illinois Citizens for Better Care, Consumer Voice Leadership Council |
5:45 p.m. - 7:00 p.m. |
Dinner on Your Own |
5:45 p.m. - 7:00 p.m. |
OmbudsManager’s Users Group Meeting |
7:00 p.m. - 10:00 p.m. |
Evening Social Event & Auction |
7:00 a.m. - 6:00 p.m. |
Registration |
7:00 a.m. - 8:00 a.m. |
Breakfast |
7:00 a.m. - 8:00 a.m. |
Assisted Living Consumer Alliance Meeting |
8:30 a.m. - 10:00 a.m. |
Plenary: Coming in 2011: Nursing Home Transparency and Improvements - Presenters: Cynthia Graunke, Director, Division of Nursing Homes, Centers for Medicare & Medicaid Services; Ed Mortimore, Technical Director, Division of Nursing Homes, CMS |
10:00 a.m. - 10:30 a.m. |
Break |
10:30 a.m. - 12:00 p.m. |
Breakout Sessions Session Handouts & PowerPoint Presentations:
The most difficult clients are frequently those who need help the most. This program will help identify and offer strategies for working with the four most common causes of difficult behavior and the four most common behaviors of difficult clients. The workshop will be helpful for beginner to intermediate practitioners and for those who train new staff. Session Handouts & PowerPoint Presentations:
This session focuses on innovative approaches to linking residents of different facilities together and providing them with a venue to share ideas, discuss concerns and resolve problems. Florida’s Long-Term Care Ombudsman Program and the Philadelphia Long-Term Care Ombudsman Program have been successful in hosting a series of countywide meetings and workshops for resident council representatives. Attend this session if you are interested in learning how to implement similar events in your community. Session Handouts & PowerPoint Presentations:
Take advantage of this excellent opportunity to enhance your knowledge of “Geriatric Failure to Thrive Syndrome.” Participants will hear state-of-the-art information about this little discussed topic and will participate in interactive dialogue with the presenters. Learn how proper assessment and culture change can help residents diagnosed with this syndrome. Hear about specific case studies that will enhance participant’s insight, knowledge and sensitivity to this issue. This session is intended for all participants. |
12:15 p.m. - 1:45 p.m. |
Lunch on Your Own |
2:00 p.m. - 3:30 p.m. |
Resident Dialogue with CMS and AoA (By Invitation Only) |
2:00 p.m. - 3:30 p.m. |
Breakout Sessions Innovative Collaborations to Improve Nursing Home Life for Residents, Family and Staff - Presenters: Karlin Mbah, Family Council Coordinator/Policy Advocate, FRIA: The Voice and Resource for Quality Long Term Care; Claire Curry, Legal Director; Legal Justice Center; Jonathan Evans, MD, MPH, Medical Director, Trinity Mission Health and Rehabilitation; Zelda McGruder, LPN, Trinity Mission Health and Rehabilitation; Luv Berkley, Unit Manager, Trinity Mission Health and Rehabilitation; Latisha Ayres, CNA, Trinity Mission Health and Rehabilitation; Brittany Burgess, CNA, Trinity Mission Health and Rehabilitation; Sheila Faulkner, CNA, Trinity Mission Health and Rehabilitation; Melva Proctor, CNA, Trinity Mission Health and Rehabilitation Panelists from Virginia and New York will present two promising models for changing nursing homes through collaborations between direct care workers, community advocates, family councils and, in the case of New York, the union. Hear certified nursing assistants (CNAs) and licensed practical nurses share their experiences of leading a Virginia quality improvement pilot project, which is based on empowerment of CNAs at Trinity Mission and creation of a more supportive work place. The medical director and the chairperson of the citizen advocacy group, which helped to design, fund and implement the project will also share their perspectives. The goal of “VA Gold” project is to improve quality of care by reducing CNA turnover. The presenter from New York will describe a collaborative project between FRIA, family councils and 1199 SEIU Labor/Management Project. That project plans to foster person-centered care by using focus groups of formal and informal caregivers to hear what dignity means for residents and for staff. Two positive outcomes the focus groups are expected to produce are improved job satisfaction for CNAs and creation of a required CNA in-service training on person-centered care. Key points in project planning and development as well as tips for partnering with direct care staff, unions and professional organizations will be discussed. Outreach to Home and Community-Based Services - Presenters: - Louise Ryan, Washington State Long-Term Care Ombudsman; Rose Floyd, King County Long-Term Care Ombudsman, Solid Ground; Leanna Gorski, Administrative Ombudsman, Solid Ground; Mary Fogh, Volunteer Coordinator, Solid Ground Washington has long promoted home and community-based services (HCBS). As nursing home beds have declined, alternatives such as home care, assisted living and adult family homes multiplied at a speed that lead to poor care, weak standards and enforcement. A recent expose in the Seattle Times entitled “Seniors for Sale” highlighted the challenges that rapid HCBS expansion presents. This session will look at and provide practical systems advocacy tips to get ahead of the curve on HCBS. The King County Long-Term Care Ombudsman Program will present on successful strategies they use to conduct outreach to the 1100 adult family homes in their county. Nursing Home Transparency - Tracing the Chain of Corporate Responsibility - Presenters: Nathan P. Carter, Attorney, Colling, Gilbert, Wright & Carter Two events in 2007 put energy behind the drive for nursing home transparency — the takeover of the country’s largest nursing home chain, ManorCare, by the multinational private equity firm, the Carlyle Group, and a New York Times investigation that exposed the complex ownership and operating structures that insulate nursing homes from accountability. Several plaintiff lawyers with experience representing families against corporate chain nursing homes, including Orlando lawyer Nathan Carter, worked behind the scenes to help the Times unravel the complex system. In this session, Carter will talk about the current status of nursing home ownership, reasons behind the complexity, the implications for the delivery of care and how the new nursing home transparency law can help to improve corporate responsibility. Guardianship Issues - Presenters: - Diane Menio, Executive Director, CARIE; Lori Walsh, Long-Term Care Ombudsman Coordinator, CARIE; Erica Wood, Assistant Director, ABA Commission on Law & Aging This session will examine the use of guardianship in long-term care settings. Information will be presented largely via case study. Cases will be reviewed that point to concerns of beneficence versus autonomy and independence. Other cases will raise concerns about using guardianship as a form of “collections,” essentially using guardianship to access finances for payment of services and move Medicaid applications more quickly rather than using other less intrusive methods. Guardianship is a drastic measure that strips the individual of all rights. The presenters will discuss advocacy strategies and will facilitate discussion with participants. |
3:30 p.m. - 4:00 p.m. |
Break |
4:00 p.m. - 6:00 p.m. |
Annual Business Meeting for Membership |
6:30 p.m. |
Dinner on Your Own |
6:30 p.m. |
Governing Board & Leadership Council Meetings |
7:00 a.m. - 10:00 a.m. |
Registration |
8:00 a.m. - 8:45 a.m. |
Breakfast |
8:45 a.m. - 10:00 a.m. |
Awards Ceremony |
10:00 a.m. - 11:30 a.m. |
Closing Plenary: Advocating for Access and Quality in the “Non-Nursing Home Setting” - Presenters: Charlene Harrington, PhD, RN, University of California/San Francisco; Anne Montgomery, Senior Policy Advisor, Senate Special Committee on Aging; Louise Ryan, State Long-Term Care Ombudsman; JoAnn Lamphere, Director, State Government Relations, Health & Long-Term Care Team, AARP |
11:30 a.m. - 11:45 a.m. |
Closing Remarks featuring Sarah Wells and John Weir, President, Consumer Voice Governing Board |
11:45 a.m. |
Conference Concludes |
Each year, the Consumer Voice gives Leadership Awards to people who have demonstrated an exceptional commitment to improving the lives of long-term care residents.
The Consumer Voice is pleased to announce the 2010 award recipients:2010 Janet Tulloch Memorial Advocacy Award: Barbara Frank |
Award Descriptions
Janet Tulloch Memorial Advocacy Award -The award was established in 2000 after the death of Janet Tulloch, a nursing home resident, author, committed advocate and long-time member of the Consumer Voice's Board of Directors. It honors a citizen advocate who has worked directly with and for residents to improve the lives of long-term-care residents.
Cernoria Johnson Memorial Advocacy Award - Cernoria McGowan Johnson (1909 -1990) set up the national program of Nursing Home Ombudsman in 1974. The award in her honor is presented each year to someone whose work has had national impact or is a model for national excellence and who exemplifies accomplishment in his or her chosen field.
Elma Holder Founder's Award - Established in 2002 as a lifetime achievement award to honor a person whose life work exemplifies leadership in the field of long-term-care reform, the award is also a tribute to Elma Holder, the Consumer Voice's founder and friend. Elma's personal commitment, integrity and vision shaped the organization and quality of care and life in long-term care.
Howard Hinds Memorial Award - The Hinds Award was established in 2005 in memory of the late Howard Hinds, a Tennessee District Long Term-Care Ombudsman. Howard was a true champion for residents and for the ombudsman program as well as a passionate advocate on national issues. The award honors an individual who has effectively advocated for residents on the local level.
Toby S. Edelman Legal Justice Award - This award was created in 2009 to honor those who, working through or with the legal system, go to extraordinary lengths to achieve justice for long term-care consumers. It is named in honor of Toby Edelman of the Center for Medicare Advocacy, whose work for more than 30 years has influenced and shaped long term-care law, policy and enforcement.