Specialized Information for:

Long-Term Care ConsumersFamily MembersAdvocatesCOVID-19

Consumer Voice Publications

  • The High Cost of Poor Care: : The Financial Case for Prevention in American Nursing Homes (April 2011)
  • The Faces of Neglect: Behind the Closed Doors of Nursing Homes

  • Nursing Homes: Getting Good Care There

  • Piecing Together Quality Long-Term Care: A Consumer’s Guide to Choices and Advocacy: This consumer guide, developed in March 2011, educates people with disabilities and older adults about their options for long-term services and supports and empowers consumers to be self-advocates for quality long-term care. The guide includes tips from consumers as well as information and resources to assist people currently living in nursing homes to move back into the community. The guide is available in several formats, including an HTML version, a PDF version and audio portions of the guide; a hardcopy is also available for $20.

  • Consumer Voice presented an overview of the Consumers for Quality Care, No Matter Where initiative at the 2011 Aging in America conference in San Francisco. The presentation detailed the Consumer Voice’s work with advocates across the country to empower consumers to be self-advocates for quality care while building a bridge between the aging and disability communities. In keeping with this work, the presentation outlines the steps taken to make the consumer guide easily accessible to persons with disabilities on the Consumer Voice website using low-cost and effective technology. Also highlighted were three citizen advocacy groups’ work to develop and distribute a state-specific guide aimed at educating and empowering older adults and persons with disabilities in need of long-term-care services to make informed decisions and become self-advocates for quality long-term care.  The Consumer Voice is in the process of developing a “How To” document to help citizen advocacy groups across the country produce and disseminate their own guides.  Access the presentation slides online