Outside Publications & Resources

Alzheimer’s Disease and Other Dementias

2011 Alzheimer’s Disease Facts and Figures An Alzheimer’s Association Facts and Figures report details the growing prevalence and escalating impact of Alzheimer’s and dementia on individuals, caregivers, families, government and the nation.
Meeting the Needs of Persons with Alzheimer’s or Other Dementia When No Informal Support is Available (CARIE White Paper) - October 2010)

Discharge Planning

Your Discharge Planning Checklist: For patients and their caregivers preparing to leave a hospital, nursing home, or other health care setting Being discharged from a hospital and going home or moving between other care settings are often stressful times for consumers and their caregivers. This discharge planning checklist from the Centers for Medicare and Medicaid Services provides consumers and their families with information about these kinds of transitions.

Home & Community-Based Care

The Center for Personal Assistance Services (PAS) presents data, publications, presentations, links, webcasts and policy and legislation in the following areas:

Need for PAS - Analysis and description of trends and needs of the population of PAS consumers, including those who are employed or seeking employment.
Home and Community-Based Services - Federal and state initiatives related to the Olmstead decision, waiting lists, Olmstead litigation and other initiatives; identification of gaps in programs and services; and analysis of state PAS policies and barriers to PAS.
Workers and Caregivers (PAS Workforce) - Tools and supports for unpaid caregivers that reflect the changing needs of caregivers as they age; strategies that lead to a PAS workforce that is geographically diverse and that maximizes workforce recruitment, retention, compensation and benefits, professional training, development, and networking; and evaluation of interventions and labor resources, such as job training services that help to improve workforce capacity of PAS providers.
Economics & Workplace PAS - Understanding the personal costs of PAS; analysis of tax reimbursement polices relating to PAS.
Emergency Preparedness - Analysis of strategies to coordinate and secure PAS services during national and regional emergencies.

LGBT

Stories from the Field: LGBT Older Adults in Long Term Care Facilities
Justice in Aging (formerly National Senior Citizens Law Center), in collaboration with Lambda Legal, the National Center for Lesbian Rights, the National Center for Transgender Equality, the National Gay and Lesbian Task Force and Services & Advocacy for GLBT Elders (SAGE), has published a report on the experiences of LGBT elders in long-term care facilities based on a survey seeking to better understand the experiences of LGBT older adults in long-term care settings. The report includes hundreds of stories and comments from LGBT elders across the country as well as policy recommendations and pertinent resources.

Nursing Homes

Return to Other Long-Term Care Issues and Resources